Stupid Sayings by stupid people
- "It's not angelman's, I deal with lots of Angelmans kids and I would recognize it right off if it was" (said by Catie's neurologist, when I asked if she could have this)
- "I was right it is Angelman's, I told you that's what it was" (Same neurologist after the test results came in)
- Kayla's teacher: "Beth, I think you should come get Kayla, I think she's having a seizure."
- ME: Well, what is she doing?
- TEACHER: Laying flat on the floor and face turning red.
- ME: I think she's pooping, leave her alone for 5 minutes and then change her diaper.
- TEACHER: Well, no, I don't think it's that.
I'm on my way.
- I got there, 5 minutes later, and could smell Kayla's diaper from out in the hallway. I took her over to the changing area, changed her, dressed her, and put her back in the circle. I said "told you so", waved and left.
Well Folks, I have to share this one with all of you on the list. Just when you think you have heard it all someone is going to come along with something to top them all.After 21 years of this and having 5 children we have been the recepients of some pretty strange remarks Such as ...Did you birth all five of them? ( NO! Some of them were hatched!) Did you want all five kids?( asked in front of the children...and a kid is a baby goat ).And to Jonathan...aren't you too big to be in a ..stroller?grocery cart?to be carried? etc. About Jonathan... " even a dog can learn something"..."He's just spoiled"..." If your faith was strong enough I am sure he would be healed"... " He does what? Why do you let him? If he was my child...." " Did you pray for patience while you were pregnant wth Jonathan?" MMM.MMM. MMM. Okay..Yesterday Jonathan and I went to get his haircut. Same place as always. Same stylist. Everyone in the place knows him and is used to us. We have the routine down to a science. Yesterday he was putting on a show for all of the girls. Laughing, pulling my hair, pulling me on to his lap, dancing to the music while sitting in the chair, pushing us out of the way to watch himself in the mirror and more! There was a new middle age lady working in the shop who kept a close eye on the activity. As we finished the marathon cut, she walked over and asked how old he was . Then she explained that she had a friend who was over social services at the Ala. State Hospital ( mental inst.). She asked if he was autistic?" "Oh .Then what is he?""What is that?" "AH.""Poor thing."Does that mean he is mental..." I cut her off and answered NO and again tried to explain a little about As and Jonathan. I had already told her he understood most of what people! said to him.Her reply was " He's not a mongoloid is he?" I nearly hit the floor! I explained nicely... No one used that term any more and if she meant Downs Syndrome ...No he was not .. that that was a different chromosome etc. " So that means he could live to a ripe old age?"" Bless your heart!" Jonathan and I both rolled our eyes and started to the door. I then heard her behind us talking about us and then she yelled to me .."He doesn't wear any shoes?" I acted as if I didn't hear her as I stopped in the front to put his shoes on before we walked outside. JONATHAN AND I HAD A GOOD LAUGH WHEN WE GOT TO THE CAR! jUST HAD TO SHARE THE STORY WITH PEOPLE WHO WOULD UNDERSTAND! THANKS YA'LL!
A friend at church insists that there wasn't anything wrong with our daughter and that she'll eventually 'catch up' like her son who was a preemie and walked late, even after I calmly explained that the combination of not walking and talking was indication that something serious could be wrong. The same friend then said, "Oh, well doctors don't know what they're talking about half of the time" when I told her that both the geneticist and neurologist strongly suspect Angelman's. Then she added, "That's why we don't go to them much." Well, I guess so when you know everything already!
I feel that I have always accepted Aaron having AS, but what I can't accept is the other people. I can't even remember ever even crying about his dx. What makes me cry is the way people are. We go to the Dr. office and sit in a waiting room and people move. What? Are they crazy? Is it contagious?
The last ordeal topped the cake. I took Aaron and Erica to a new Dentist. We were called to go in and they have us sit in a room where a Lady is cleaning teeth. We were next to be seen. Then another lady and her two kids come in and sit down and then another Lady and child come in and sit. The Women cleaning teeth bypassed us and called on the other people first. Meanwhile we are sitting there for an hour and 45 minutes. She just kept tip toeing around us like we were not even there. Finally after everyone else was gone she says "come on Erica it's your turn" and I said no I would like Aaron to go first because he's getting very rambunctious. She looked at me like I was crazy. He can't get his teeth cleaned she says. I replied WHY NOT? She said "well he could die". Well I could go on and on, but she said something about kids like this need to get an antibiotic shot before having there teeth cleaned because they could die of heart complications. I still have no idea what she was talking about, but she did not want to clean his teeth. I started crying and yelled at her HE IS A HUMAN BEING AND HE NEEDS HIS TEETH CLEANED.
He is perfectly healthy and is not going to die.
She left for a few minutes and when she returned she said no one else has heard of this (AS) either, but the Dr. said it was ok to clean his teeth.
Initially I was scared to go and do this, because I thought It might be difficult for someone to do this simply, because he can't do what they ask, but I had no idea it would be so crazy.
This Dentist office was highly recommended to us by our Pedi, but it turned out the Dr. on staff was a young fill in with limited experience. When it was time to see the Dentist she saw Erica first and examined every single tooth and dictated to an assistant in there mumbo med terms. Then it was Aaron's turn and she stuck the mirror thing in his mouth he bites down on it and that was it she was finished and all she could say to the assistant He's 100% meaning his teeth are perfect with no problems. Sure! 100% He grinds his teeth 24 -7 and I can barely brush his teeth.
What do you do drug them up first? I can understand this is a problem for Dentist ect.. But they didn't even tell what us we should do next time. They just left it at perfect teeth. His teeth are grinded almost to numbs!
The following is from a pathetic example of a human being who seems to think it's "cool" to use the fact that someone has a handicapped child in their "rebuttal" to an online argument. The amusing thing is that this Steve Dakin (firstname.lastname@example.org) individual appears to be looking for a job. I trust any employers seeking background will find his text below of interest:
Newsgroups: sympatico.highspeed Subject: Re: Space Shuttle broke up. Lines: 73 Message-ID: Date: Sun, 2 Feb 2003 19:03:05 -0500 NNTP-Posting-Host: 18.104.22.168 X-Complaints-To: email@example.com X-Trace: news20.bellglobal.com 1044230574 22.214.171.124 (Sun, 02 Feb 2003 19:02:54 EST) NNTP-Posting-Date: Sun, 02 Feb 2003 19:02:54 EST Xref: nf1.bellglobal.com sympatico.highspeed:136909 "Marc Bissonnette" wrote in message news:Xns9316BD242A203dragnetinternalysisc@126.96.36.199... > "Dakin" wrote in > news:BPg%9.547$CF1.firstname.lastname@example.org: > > > Go ahead call me stupid, call me a troll, say I need a life. I don't > > really give a rats ass. I think the people who live on this NG are the > > ones who need a life, Mr. Pissonit. Why don't you weep and wail for > > the 20 000 children who starved to death on this planet today before > > noon and weep and wail for all the food that useless piece of shit > > that burned up in the atmosphere represented. There's something to cry > > over, not the end of some elitist eggheads and their multibillion > > dollar toy. > > > > Now FOAD. > > All righty then: > > You are stupid. > > You are a troll. > > You are in *serious* need of a life. > > You also need to come up with more creative manglings of my last name. > The last time I heard "pissonit" was literally in the fourth grade. My > son could come up with better than that and he's non-verbal. > > Finally, you're closing statement, FOAD, clearly shows us that even > trailer trash can get DSL. Thanks for polluting the gene pool. (And > sympathies again to your parents, for their complete and utter failure at > creating something better than themselves. > > We'll let you have one more post and then in the plonk file with the > other geniuses like John Shields and John Lauzon (Whom I'm sure you look > up to as your personal heroes) > Look jerk, I do not understand why anyone who is the father to a chromosomally mutated kid would hurl the "parent" insults like you do. I guess it's just another sign of your ever growing idiocy. Since you were the one who started hurling personal insults, I will feel free to do the same. I was merely expressing my belief that all this shit over the Shuttle is misplaced and exagerated. It took you all of two posts to insult me, call me stupid and now your insulting my parents and calling me "trailer trash". Your conduct bears all the hallmarks of someone who is not only intellectually challenged but unable to construct a reasonable argument against my beliefs. You seem to be a very weak and stupid. Now it's my turn to insult. At least my kids can walk and talk. Good luck with the blob. A little advice. Next time make the bitch swallow. Now FOAD.
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